San Francisco Mammography Registry: A Research Resource.

 

 

The San Francisco Mammography Registry is a registry of women undergoing mammography in the San Francisco Bay Area.

 

Doctors and scientists at the University of California, San Francisco are creating a mammography registry to learn more about mammograms, advanced breast imaging tests, and breast health. The main goals of the registry are to better understand how well breast imaging tests find breast cancer in women of various ages and ethnicity, provide information to radiologists to improve the overall interpretation of mammograms, and assist participating radiology facilities to meet federal standards for quality control. We hope to learn more about how mammograms and advanced breast imaging tests can best detect breast cancer and what characteristics of women and tumors influence detection.

All women having breast imaging tests (mammograms, breast ultrasound, breast magnetic resonance imaging) at participating radiology practices in the San Francisco Bay Area are asked to participate. Women are asked to complete a one page Breast Health History Questionnaire. Radiology information is provided by each radiology facility. The SFMR obtains breast cancer information from cancer registries in order to evaluate how wellbreast imaging tests find breast cancer.

SFMR scientists belong to the National Cancer Institute Breast Cancer Surveillance Consortium, which pools information from mammography registries across the United States for analysis and publication in scientific journals. All information combined by SFMR and consortium scientists for publication use statistical totals and averages only. All information is kept confidential and is protected by a National Institutes of Health Federal Certificate of Confidentiality and Memorandum of Understanding with the Agency for Healthcare Research and Quality (AHRQ).

 

The National Cancer Institute, Patient-Centered Outcomes Research Institute, ChevronTexaco Corporation, and the County of Marin Department of Health and Human Services fund the SFMR.