San Francisco Mammography Registry:
A Research Resource

The SFMR encourages investigators to use the registry data and population to conduct research studies about breast cancer and breast health.

 
 
Data Distribution Protocol & Policy

All requests for data are reviewed by the Data Utilization Committee for feasibility, appropriate use of data, and priority. Prior to requesting data, please read the CONFIDENTIALITY POLICIES AND PROCEDURES FOR DATA MANAGEMENT (DOC form). To request data, complete the SFMR Data Request Form (DOC form) and send it to Dr. Karla Kerlikowske, chair of the Data Utilization Committee. The data dictionary (PDF form) that describes variables in the SFMR and the data collection forms (pdf questionnaire and .doc of radiology variables) are available for review.


Priority of data use is as follows:
1. UCSF investigators
2. non-UCSF academic investigators


IRB approval is required for all data use.


Investigators using SFMR data are expected to submit a timely report on data use. All publications resulting from data analysis must acknowledge funding sources for the SFMR.

 

Available Forms:

Confidentiality Policies and Procedures for Data Management (DOC form)

SFMR Data Request Form (DOC form)

BCSC Data Dictionary (PDF form)

 

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