Data Distribution Protocol & Policy

The SFMR encourages investigators to use the registry data and population to conduct research studies about breast cancer and breast health.

 

 

All requests for data are reviewed by the Data Utilization Committee for feasibility, appropriate use of data, and priority. Prior to requesting data, please read the San Francisco Mammography Registry Data Use Agreement (DOC form). To request data,complete the SFMR Data Request Form (DOC form) and send it to Dr. Karla Kerlikowske, chair of the Data Utilization Committee. Please refer to the SFMR patient questionnaire and radiology form for data items that are available in our research database.

 

IRB approval is required for all data use.

 

Investigators using SFMR data are expected to submit a timely report on data use. All publications resulting from data analysis must acknowledge funding sources for the SFMR.

 

Available Forms:

 

Confidentiality Policies and Procedures for Data Management (DOC form)

 

SFMR Data Request Form (DOC form)